Re: “ Drug coverage to be discontinued for Langford girl with fatal condition ,” June 18. I was saddened to read the news ...

The news comes as a Batten disease expert criticizes B.C. for not consulting experts, and fundraising efforts for the family re-ignite.

An emotional mother reacts to the news B.C. will not continue funding an expensive drug treatment for her nine-year-old daughter’s rare disease.

The province says there's no evidence to show the drug is still working. A Batten disease expert say they're relying on old data.

Mother Jori Fales says daughter Charleigh, who has a rare fatal condition, likely won’t see her 11th birthday due to the ...

A Vancouver Island family is in shock after learning the British Columbia government will stop funding an extremely expensive ...

Charleigh is one of fewer than 20 children in Canada with this rare condition. She is the only patient in B.C. and was diagnosed just a few weeks before her fourth birthday.

“It’s a roller-coaster,” says mom Jori Fales, speaking to Goldstream Gazette June 19 from Victoria General Hospital, the day ...

The Canada Drug Agency has now done the review for Brineura and based on that review, the province determined the drug was no ...

The drug, which costs about $1 million a year, is intended to slow the decline in patients’ ability to walk and talk until ...