Compiling data and creating a new registry for autism CBS News reported that the National Institutes of Health, which operates under the Department of Health and Human Services, announced earlier ...

NEW YORK (PIX11) — An autism registry will not be created, a spokesperson for the United States Department of Health and Human Services told PIX11 News in an email Thursday afternoon. Instead of ...

The Autism Science Foundation said the program raised concerns over privacy and confidentiality. On Friday, April 25, an HHS official told USA TODAY it is not creating such a registry.

SOURCE: CBS News, April 28, 2025 What This Means For You Autism research will continue without a new nationwide patient registry, using secure, private data to protect private information.

The Autism Science Foundation said in a statement that the limited details provided has worried families about confidentiality. "The use of registries and registry data in general can be a valuable ...

This week, National Institutes of Health Director Dr. Jay Bhattacharya sent shockwaves through the autism community by announcing the creation of a “disease registry” to track autistic people ...

The Department of Health and Human Services denied that it would create an autism health registry after advocates for the autistic community expressed fear about reported plans for one. An HHS ...

Autism Treatments: Most children with autism are on 5 or more different treatments at any given time, 67 percent of which are not covered by insurance. Parents have reported they spend an average ...

The El Dorado County Sheriff's Office uses a special autism registry to help find them. So far, 65 people with the disorder are on the registry, but the Sheriff's Office wants more people to sign up.