Charleigh Pollock's mother says the family has gone through a roller-coaster of emotions since learning the B.C. government ...

The Canada Drug Agency has now done the review for Brineura and based on that review, the province determined the drug was no ...

Re: “ Drug coverage to be discontinued for Langford girl with fatal condition ,” June 18. I was saddened to read the news ...

The Ministry of Health has ruled that the funding for the medication to preserve the quality of life for Charleigh will be ...

The B.C. government said Wednesday it will be pulling funding for an extremely expensive drug used by one person in the ...

The mother of a terminally ill nine-year-old girl said she is still processing news she received from the B.C. government on ...

Pollock is the only child in B.C. living with the rare genetic disorder Batten disease. She has been receiving the bi-weekly ...

Mother Jori Fales says daughter Charleigh, who has a rare fatal condition, likely won’t see her 11th birthday due to the ...

The drug, which costs about $1 million a year, is intended to slow the decline in patients’ ability to walk and talk until ...

The news comes as a Batten disease expert criticizes B.C. for not consulting experts, and fundraising efforts for the family re-ignite.

Pollock is the only child in B.C. living with the rare genetic disorder Batten disease. She has been receiving bi-weekly ...